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The first few nights



                
                     One of the nurses I had just had brought in a bed. They wanted to switch me over to a regular bed since I was being admitted. By this time I was frightened. Thinking to myself " Wow this is the big moment..this is the pain I have been potentially waiting for." How messed up is that. To have to think to yourself are you sick enough to go to the hospital ? It's pathetic actually. As I know many people go into the hospital with crohn's disease and they look at people like me like drug addicts. So from what I knew in the past experience going in for just fluids and meds, you basically have to be almost dying to receive them. Not that I think they wouldn't but the ER itself is not trained for this disease. Almost like if you can get through the ER then you will  receive proper care. The health care system sucks. 

                       We arrived on the fifth floor. It was critical care and the cardiac unit on the same floor.. I have never had been admitted before. So I didn't know what was in store for me. They hooked up my  NG tube. They hooked in my iv and I then waited for my nurse. Now a lot is slightly cloudy at what happened. I had a very hard day and all I wanted to do was sleep. Of course I was miserable. I was still hot and bright red, and in major pain. I just didn't understand after being there so long why I hadn't been helped with my pain. The nurse finally came in and we talked for a bit. I got pain meds and and anti nauseous. I went between two different kinds because pain meds make me nauseated. Its not enjoyable when you already feel like you could puke. My mom, dad, and Megan were still with me. I of course wanted Megan to stay with me. She wanted to stay with me. It wasn't easy. You should see what they gave her to lay in at night. It's a recliner chair that sits back and you can lay back but that's it. It reclined all the way back to fit to her but it didn't give you much moving room. It was so hard to go pee. I was not aloud to go to the bathroom in the room I had to use the commode. I was hooked up to many tubes so I had to get help from either the CNA or the nurse. So I finally went to sleep, actually I should have said, passed out. I was on strong medication. They put me on a steroid they use for COPD. I was on a ton of fluids, two different anti nausea and pain meds. Specifically I was on a fentanyl cocktail as my wife would say it. 

                     Then in the middle I woke up in the night and I was SOAKED, My johnny was wet my bed was wet. I was shivering. I didn't want to call the nurse I was embarrassed. I know I shouldn't have been but it was my natural instinct. Plus I was cold so I didn't want to uncover. Unfortunately that was not comfortable at all. I sucked up my pride. That night I woke up about 3 more times sweaty wet and cold.The nurses had a schedule of coming in when they first get there and see how you are. Then came back through around 5 or 6 if you are there and then then in the middle of the night to take vitals. So there was not any "good" sleep. 

To be continued...
                        

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